As part of its dementia strategy, the CQC commissioned IFF Research in partnership with Leeds Beckett University to carry out the study. The report draws on a review of international and UK research from universities and care organisations, alongside insights from discussion groups with experts, regulators, and people with lived experience of dementia or caregiving.
The research identifies practical approaches that improve the experience of care, including:
- Collaborative care planning: Involving people with dementia, their families, and carers in creating care plans rather than making decisions for them.
- Social interaction and meaningful activities: Structured, inclusive activities support wellbeing and may reduce dementia symptoms.
- Community involvement: Encouraging opportunities to engage with local communities helps maintain choice and control in daily life.
- Homelike environments: Supporting people to continue activities meaningful to them in smaller, homely settings reinforces a sense of ‘home.’
- Cultural and language sensitivity: When possible, matching people with carers who speak their first language and share cultural understanding helps maintain trust, identity, and belonging.
Building on a CQC report from last year on dementia support, the commission will use these findings to further shape its dementia strategy. This will involve consultations with people with lived experience, charities, support organisations, experts, and government stakeholders, in line with the recent recommendations of the Casey Commission.
From autumn 2026, the CQC will begin co-producing guidance for health and social care providers on delivering best-practice dementia care.
